On Participation and Authorization
General information for new registries
Conditions to join BMDW
Participating registries are expected to adhere to the Standards, Guidelines and Recommendations of the World Marrow Donor Association (http://www.worldmarrow.org).
The participating cord blood banks are expected to adhere to the NETCORD/FACT Standards or equivalent standards.
Stem cell donor registries or cord blood banks need to be fully operational before contacting the BMDW Office regarding future participation in BMDW.
Criteria for registries to be mentioned as a future registry in BMDW:
A registry is allowed to submit data of donors or cord blood units for another registry, with their consent, on the condition that the data is provided in a separate file with the country of origin and the registry clearly identified. It is the registry’s responsibility to prevent stem cell donors or cord blood units being registered twice in BMDW.
Financial obligations for registries and transplant centres
Table with registry fees for BMDW:
Fee for access to the BMDW data download
The BMDW data extraction is available for participating registries. A download fee will be levied for registries that have requested access to the complete BMDW data download.
Table with data download fees for BMDW registries:
Contact BMDW Office
If you would like to join BMDW as a participating registry, please provide details of your registry (number of donors or cord blood units, contact details, etc.). Your first step should be to send an email to:
Machteld Oudshoorn, PhD
Chairman of the Editorial Board
2333 BZ Leiden
Email: BMDW --at-- Europdonor --dot-- NL
Please provide details of your registry (number of donors or cord blood units, contact details, etc.)
About the BMDW Advisory Committee
In November 2003 the BMDW Advisory Committee (BMDW-AC) was installed by the BMDW Editorial Board (BMDW-EB). The current members are:
The main tasks of the committee are:
All participating registries are expected to adhere to the standards of the World Marrow Donor Association. However the Editorial Board of BMDW or Europdonor Foundation do not have the intention and the tools to exercise site visits or to verify such WMDA compliance of the participating stem cell donor registries or the participating cord blood registries. Therefore the Editorial Board of BMDW and Europdonor Foundation cannot be held liable in case a participating registry is not acting according to the WMDA Standards.
Authorization Information for Transplant Centres and Search Co-ordinators
The on-line facilities of BMDW can be used by transplant centres and search co-ordinators. Authorisation is given primarily by the national hubs. People who are not professional members of the BMT community will NOT be authorised. Click for more information on authorization for the on-line facilities.
BMDW - Bone Marrow Donors Worldwide * Plesmanlaan 1b * 2333 BZ Leiden * The Netherlands